You know how the saying goes, “When life gives you lemons…” I like lemonade, but I’ve had about as much as I care to have. A lot has happened since our last post, but each time I try to make a post we’re only a day or two away from another answer. Or, in some…
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Waiting On CT Scan is No Fun at All
The only thing we can do at this point is anticipate the next CT scan, and the answers it holds. Karen has been experiencing a little pain in her stomach, which makes us worried that the brief immunotherapy treatments might not have helped. In the mean time, she’s hanging out around the house. Her white…
Friday 9-1 Update
The trial organizers have decided to stop the clinical trial for Karen. We’re not quite sure where that leaves us, but not all options are closed. Some may actually open for her, depending on her CT scan results in a couple weeks. If the CT scan shows that the cancer has been reduced, she’ll likely…
Thursday 8-31 Update
Last night went well for Karen from a queasy/chilly/achy perspective, because she didn’t have any of that, but she had a short period where her heart rate went up a bit. It was short lived, and of little concern in itself. The rest of the night we both slept soundly. Or, at least as soundly…
Wednesday 8-30 Update
Karen felt better by morning, and has improved through the day. Her first appointment of the day was with a hematologist. Karen was diagnosed with Antiphospholipid Antibody Syndrome many years ago, and this diagnosis has been keeping her out of some treatment options. For due diligence, her oncologist would like this diagnosis confirmed. After that…
Tuesday 8-29 Update
Today is a bit more rocky. We waited too long to take the Advil, and then couldn’t keep it down once she took some. So, she’s back to experiencing the chills and fever. At least we know that the Advil is the med that made the biggest difference for the fever and chills. There was…
Monday 8-28 Update – A New Week Starts
Karen and I are back up at the Cleveland Clinic for her second cycle of immunotherapy. I’ll post updates here throughout the week. This is the Monday update, and I’ll try to add a new post each day, even if I have little to report. Occasionally, I’ll revise a post throughout the day, so if…
The Weekend is Ours!
Friday’s treatment went much better. She dosed with Advil and Tylenol in advance, and only brief chills and only slight fever. Now, we’re experiencing Cleveland. First stop Greek!
Round 1 Clinical Trial Updates – Saturday
8AM Saturday… The treatment last night went much better. We adjusted the timing of the Tylenol and Advil to make sure she was properly dosed prior to the start of the symptoms, and the chills were very minor and brief. Hooray! We actually stayed up late to catch up on America’s Got Talent, and she was…
Round 1 Clinical Trial Updates – Friday
I’ll post updates on this blog post if I have anything new to report throughout the day, so check this again for new content if you re-visit the blog. Morning update… Karen is sleeping soundly, having recovered from another evening of the immunotherapy drug trial. She had another bout with the chills, but it lasted…