Hospice changed up some of Karen’s meds, and took her completely off others. They increased the amount of oxy she can take, and have another med coming tomorrow that will work with the oxy to reduce her pain further. Altogether we seem to have a better plan for pain management, which is a relief. It…
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Switching Gears – Hospice
We signed for Hospice today, which will change a few things for Karen. Karen is no longer receiving treatment for her cancer, so her care has been in limbo since discharge. All the same doctors are willing to continue helping her, governmental regulations make pain management very difficult, since she can’t travel up to the…
Mid Week Update 5-2
Today we reached out to hospice so Karen has better care for her symptoms. She’s still having pain in her back, and we have some new meds to help. The effort it took to help her with this was one of the deciding factors to start hospice care. We don’t want to wait too long…
Occupational Therapy Tuesday
Karen was sleepy most of the day, but we did have a visit from an Occupational Therapist from Mt Carmel Home Health. The nurse will be working with us over the next couple weeks to see if she can help us move around the house better. Karen can sit and stand with my assistance, but…
Sleepy Monday
Karen pushed herself pretty hard over the weekend, and is getting some well earned rest. She’s trying to take the medication to reduce her ammonia levels, and that’s going better than it was. It’s some pretty nasty tasting stuff, so we’re using Italian shaved ice treats to clear the palate between gulps. That’s making it…
Sleepy Sunday
The trek outside yesterday left Karen feeling a bit tired today. She was up for a bit late morning, but after that we spent the day resting, including a mid afternoon nap for me. We did manage to get the new Ipad mini figured out well enough to make a couple FaceTime calls early evening….
Saturday Update 4-28
I don’t have much of an update for today, but wanted to post something so nobody worried. Karen slept late but was up most of the rest of the day. We got an I-pad mini from Amazon and we joined the apple cult so we could FaceTime. The homemade wheelchair ramp that was recently finished…
A Friday Update
I’m glad we have this blog to share updates. Sometimes it can be a bit challenging for us to keep people up to date while we care for Karen, and this blog makes that a lot easier. I’m glad you are reading this. Thank you. Click through to read more…
A Sleepy Day Around the House
Karen is doing a great job adapting to her reduced strength. Before the “event” she was caring for herself most of the time. Sometimes she needed my help getting up from the couch, or taking a shower, but other than that she managed things pretty well. Although she can’t get up and move around by…
Settling In 4-24
I managed to get 8 hours of sleep last night. They weren’t all in a row, but I did get them, and feel a little more awake. I’ll use that opportunity to post an update and also miscellaneous details about her treatment. We’ve had Karen up a couple times today, and have a system for…